Tuesday, April 19, 2005

General malaise and blahs

I have been in a foul mood for the last 4 days, and admittedly, those around me are getting the brunt of it. This is the reason why I have been avoiding everyone - not wanting to be nasty or say something inappropriate. This mood is an aberration from my usual upbeat self, but I think I have been beating myself over the head with it, believing I should be the usual chipper, funny self that I am. I suppose everyone is entitled to a few "off" or "bitch" days. Many of you have taught me that it is okay to do this. It's only human.

All of this I suppose is a direct result of recent medical results regarding my back and leg. It's been an ongoing thing for more than a decade, and the frustration is growing. In my late teens and early 20's I complained to my doctors that I was experiencing a lot of back pains and they simply shrugged it off as over-activity or due to sports. No tests were done, and I was too young to know the difference. The pain increased over the years and by 24, I was in so much pain that my Family physician finally decided to do some tests. They diagnosed me with a disease called Ankylosing Spondylitis, a disorder that causes fusing of the joints in the vertebrae.

Anyhow, I was put on a variety of drugs (Votaren, Ibuprofen, Vioxx, Bextra) to compensate for the pain, and was told that I would be crippled by my 40's or 50's. Then, a new family doctor came along who had the same disease himself, and he sent me to a new rheumatologist, who said I didn't have it, but diagnosed me with the general malaise of fibromyalgia, which my Family doctor disagreed with. On top of all this, 2 1/2 years ago, I got severe sciatica in my right leg, which left me relying on the use of crutches or a cane for 6 months or more. The sciatica hasn't gone and it is aggravating the hell out of me. All of the anti-inflammatory drugs (vioxx, bextra), which I was put on, have now been pulled off the shelves as they cause heart disease, strokes, etc.

The problem here is that I have had no consistency with the medical experts. The only consistent thing, has been the pain, which is with me on a daily basis. I am beginning to lose faith and confidence in the Medical field. A 10 or 15 minute appointment with my Specialist is NOT a sufficient amount of time to gauge my situation and to develop an educated and empirical diagnosis.

I have an appointment today with my Specialist whom I plan on discussing my issues with. I want answers and options that I can take to resolve this. I want to be my chipper, mobile, happy self, without the need for drugs. I want to get back to enjoying life and living. I hate not knowing, and I hate being grumpy.

Breathe in, breathe out. (ahhhhhhh)
The meditation and the blogging sure do help, so thanks for listening.

6 comments:

Snooze said...

I don't know anyone who can remain cheerful in the face of chronic pain. I have no advice but if you need help finding info on specific conditions, I am a health sciences librarian and you can email me - letmesnooze@gmail.com

epicurist said...

Thanks Snooze for the kind offer and the words. I think it's more frustration than anything else. It will come and go as it always does. Feeling better already, and trying to remember that there are people way more worse off than me. Besides it's too nice a day outside to be a nasty bastard. ;-p

St. Dickeybird said...

Awwww, I feel for you Epi!

If you think a drink with Uncle Dickey would help, you just have to ask!

epicurist said...

Actually, I went to see teh rheumatologist who apologised for not having any answers other than to suggest a drug treatment. Anyhow, I am feeling much better this afternoon. Robaxacet was needed to unknot my back and it seems to be working.

Uncle Dickey, I will take you up on the drink (sometime next week?)

mainja said...

we're always here to listen. happy to do so in fact.

i'm assuming you have done this already, but i know someone who had syatica (can't spell at all, sorry) and chiropractic did her a world of good. it made a huge difference.

what about alternative stuff, someone recently blogged about someone in toronto, normlr i think.

epicurist said...

Mainja - Thanks sweetie! :)

I've been seeing a physiotherapist and will continue with RMT services as well. Take it day by day. Feeling much better today and getting back to my chipper self.